Membership of Haemochromatosis International is open to any patient organisation or support group working for people affected by the condition. At present the membership offering and fee structure is being developed, but we welcome your contact, as we need to get as many groups involved as we possibly can. We will be more credible and more effective as we link more organisations together.
Current members of HI are listed here (alphabetical order of country). Please click through to learn more about each organisation and to then follow links to their own websites and contact details.
Members
Australia
Haemochromatosis Australia
Belgium
Haemochromatose Vereniging Vlaanderen (HVV)
Brazil
Grupo Brasileiro de Hemocromatose Hereditaria
(Brazilian Group of Hereditary Haemochromatosis)
Canada
Canadian Hemochromatosis Society
Europe
EFAPH (European Federation of Associations of Patients with Haemochromatosis)
France
Association Hémochromatose France (AHF)
Fédération Française des Associations de Malades de l’Hémochomatose (FFAMH)
Germany
Hämochromatose-Vereinigung Deutschland e.V.
Hungary
Hemokromatózisos Betegek Egyesülete
Ireland
Irish Haemochromatosis Association
Italy
Associazione per lo Studio dell’Emocromatosi e delle Malattie da Sovraccarico di Ferro
http://haemochromatosis-international.org/italy
Norway
Norsk Hemokromatoseforbund
Poland
https://www.facebook.com/?ref=tn_tnmn
Portugal
Associação Portuguesa de Hemocromatose
Spain
Asociación Española de Hemocromatosis (AEH)
United Kingdom
The Haemochromatosis Society (UK)
United States of America
Non-Members
We are also aware of other haemochromatosis organisations around the world who are not members. These organisations may be able to provide you with information and support in their countries.
Belgium
Hemochromatosis Belgian Association (HBA), www.hemochromatosis.be
Denmark
The Danish interest group for Haemochromatosis, www.haemokromatose.dk
Holland (Nederlands)
Hemochromatose Vereniging Nederland (HVN), www.hemochromatose.nl/documents/home.xml?lang=nl
Iceland
Icelandic Hemachromatosis Society
South Africa
Haemochromatosis Society of South Africa, www.haemochromatosisza.org
Switzerland
Hämochromatose Schweiz, www.sh-haemochromatose.ch
United States of America
American Hemochromatosis Society (AHS), www.americanhs.org
Celtic Curse, www.celticcurse.org/
Iron It Out, ironitout.org