Member Organisations

World membershipMembership of Haemochromatosis International is open to any patient organisation or support group working for people affected by the condition. At present the membership offering and fee structure is being developed, but we welcome your contact, as we need to get as many groups involved as we possibly can. We will be more credible and more effective as we link more organisations together.

Current members of HI are listed here (alphabetical order of country). Please click through to learn more about each organisation and to then follow links to their own websites and contact details.

Members

Australia
Haemochromatosis Australia

Belgium
Haemochromatose Vereniging Vlaanderen (HVV)

Brazil
Grupo Brasileiro de Hemocromatose Hereditaria
(Brazilian Group of Hereditary Haemochromatosis)

Canada
Canadian Hemochromatosis Society

Europe
EFAPH (European Federation of Associations of Patients with Haemochromatosis)

France

Association Hémochromatose France (AHF)

Fédération Française des Associations de Malades de l’Hémochomatose (FFAMH)

Germany
Hämochromatose-Vereinigung Deutschland e.V.

Hungary
Hemokromatózisos Betegek Egyesülete

Ireland
Irish Haemochromatosis Association

Italy

Associazione per lo Studio dell’Emocromatosi e delle Malattie da Sovraccarico di Ferro

http://haemochromatosis-international.org/italy

Norway
Norsk Hemokromatoseforbund

Poland

https://www.facebook.com/?ref=tn_tnmn

Portugal
Associação Portuguesa de Hemocromatose

Spain

Asociación Española de Hemocromatosis (AEH)

United Kingdom
The Haemochromatosis Society (UK)

United States of America

Iron Disorders Institute

Non-Members

We are also aware of other haemochromatosis organisations around the world who are not members. These organisations may be able to provide you with information and support in their countries.

 

Belgium
Hemochromatosis Belgian Association (HBA), www.hemochromatosis.be

Denmark

The Danish interest group for Haemochromatosis, www.haemokromatose.dk
Holland (Nederlands)
Hemochromatose Vereniging Nederland (HVN), www.hemochromatose.nl/documents/home.xml?lang=nl

Iceland

Icelandic Hemachromatosis Society

South Africa

Haemochromatosis Society of South Africa, www.haemochromatosisza.org

Switzerland

Hämochromatose Schweiz, www.sh-haemochromatose.ch

United States of America
American Hemochromatosis Society (AHS), www.americanhs.org

Celtic Curse, www.celticcurse.org/

Iron It Out, ironitout.org