Membership of Haemochromatosis International is open to any patient organisation or support group working for people affected by the condition. At present the membership offering and fee structure is being developed, but we welcome your contact, as we need to get as many groups involved as we possibly can. We will be more credible and more effective as we link more organisations together.
Current members of HI are listed here (alphabetical order of country). Please click through to learn more about each organisation and to then follow links to their own websites and contact details.
Members:
- Australia
Haemochromatosis Australia - Belgium
Haemochromatose Vereniging Vlaanderen (HVV)
- Brazil
Grupo Brasileiro de Hemocromatose Hereditaria
(Brazilian Group of Hereditary Haemochromatosis)
- Canada
Canadian Hemochromatosis Society
- Europe
EFAPH (European Federation of Associations of Patients with Haemochromatosis)
- France
Association Hémochromatose France (AHF)
Fédération Française des Associations de Malades de l’Hémochomatose (FFAMH)
- Germany
Hämochromatose-Vereinigung Deutschland e.V.
- Hungary
Hemokromatózisos Betegek Egyesülete
- Ireland
Irish Haemochromatosis Association - Italy
Associazione per lo Studio dell’Emocromatosi e delle Malattie da Sovraccarico di Ferro
http://haemochromatosis-international.org/italy - New Zealand
Leukaemia & Blood Cancers NZ - Norway
Norsk Hemokromatoseforbund - Poland
https://www.facebook.com/?ref=tn_tnmn - Portugal
Associação Portuguesa de Hemocromatose - Spain
Asociación Española de Hemocromatosis (AEH) - United Kingdom
The Haemochromatosis Society (UK) - United States of America
Iron Disorders Institute
Non-Members:
We are also aware of other haemochromatosis organisations around the world who are not members. These organisations may be able to provide you with information and support in their countries.
- Belgium
Hemochromatosis Belgian Association (HBA), www.hemochromatosis.be - Denmark
The Danish interest group for Haemochromatosis, www.haemokromatose.dk - Holland (Nederlands)
Hemochromatose Vereniging Nederland (HVN), www.hemochromatose.nl/documents/home.xml?lang=nl - Iceland
Icelandic Hemachromatosis Society - South Africa
Haemochromatosis Society of South Africa, www.haemochromatosisza.org - Switzerland
Hämochromatose Schweiz, www.sh-haemochromatose.ch - United States of America
American Hemochromatosis Society (AHS), www.americanhs.org
Celtic Curse, www.celticcurse.org/
Iron It Out, ironitout.org