Membership of Haemochromatosis International is open to any patient organisation or support group working for people affected by the condition. Membership of Haemochromatosis International provides an opportunity to share resources and experiences, to learn from each other and to advocate more strongly within and across national borders for screening and treatment.
Current members of HI are listed here (alphabetical order of country). Click on the links to their own websites to learn more about each organisation and for contact details.
Members:
- Australia
Haemochromatosis Australia - Brazil
Grupo Brasileiro de Hemocromatose Hereditaria
(Brazilian Group of Hereditary Haemochromatosis)
- Canada
Canadian Hemochromatosis Society
- Europe
EFAPH (European Federation of Associations of Patients with Haemochromatosis)
- France
Association Hémochromatose France (AHF)
Fédération Française des Associations de Malades de l’Hémochomatose (FFAMH)
- Germany
Hämochromatose-Vereinigung Deutschland e.V.
- Hungary
Hemokromatózisos Betegek Egyesülete
- Ireland
Irish Haemochromatosis Association - Italy
Associazione Emocromatosi - https://www.emocromatosi.it
- New Zealand
Leukaemia & Blood Cancers NZ https://www.facebook.com/HaemochromatosisNZ - Norway
Norsk Hemokromatoseforbund
- Portugal
Associação Portuguesa de Hemocromatose - Spain
Asociación Española de Hemocromatosis (AEH) - United Kingdom
The Haemochromatosis Society (UK) - United States of America
Iron Disorders Institute
Non-Member organisations:
Other haemochromatosis support organisations, not current members of Haemochromatosis International which may be able to provide you with information and support in their countries are listed below. In addition there are many Facebook groups which provide online support for people with the condition.
- Belgium
- Haemochromatose Vereniging Vlaanderen (HVV)
- Hemochromatosis Belgian Association (HBA),
- Denmark
www.haemokromatose.dk - Holland (Nederlands)
Hemochromatose Vereniging Nederland (HVN) - www.hemochromatose.nl
- Iceland
Járnofhleðsla – Hemochromatosis – Iceland - South Africa
Haemochromatosis South Africa - United States of America
American Hemochromatosis Society (AHS), www.americanhs.org
Celtic Curse, www.celticcurse.org
Iron It Out, ironitout.org