Members Only

This section is restricted to member organisations only. Here you will find resources developed and published by member organisations in multiple languages. Resources include information booklets, patient videos, podcasts, educational materials and other resources which may be of use to other member organisations.

You will also find links to peer reviewed published research for the past 5 years, and direct links to papers available via open Access.

There are also ideas for awareness raising, stakeholder engagement, government relations, sponsorships and fundraising.

Starting a Support Organisation

Government Relations and Stakeholder Engagement

Communications and Social Media



Awareness and Fundraising Activities