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- Haemochromatosis: Our answers to your questions
- Haemochromatosis 2025 conference videos
- HARI therapeutic guidelines
Haemochromatosis: Our answers to your questions
This booklet provides a helpful overview of the condition, including symptoms and treatment options, explains common terms, and answers frequently asked questions. It is currently available in English, Portuguese and Hungarian, with more languages coming soon.
Patients and Experts Together: Conference videos
These highly informative presentations were filmed at our Haemochromatosis 2025 – Patients and Experts Together event in Birmingham, UK.
Click on any one of the screens to watch the video, then click on the square icon in the bottom right corner of the screen to enlarge the presentation.
Introduction (12 mins)
Howard Don MBA
Conference Chair and Trustee at HI
Principles of diagnosis and what the various blood tests actually represent (30 mins)
Dr Jeremy Shearman
Consultant Gastroenterologist and Hepatologist
Genetic Haemochromatosis: what it means for your health (26 min)
Dr Janice Atkins
Senior Research Fellow
Special session: Venesection (35 mins)
Dr Prabhsimran Singh
Hepatology Research Fellow
Kim Hicks RN
Haemochromatosis Nursing Sister
Update on Haemochromatosis Arthropathy (34 mins)
Professor Patrick Kiely
Consultant Rheumatologist
Haemochromatosis: opportunities for future treatments (38 minutes)
Dr Jeremy Shearman
Consultant Gastroenterologist and Hepatologist
HARI therapeutic guidlines
This advice for patients on treatment options for Haemochromatosis arthropathy was published by the HI as part of the Haemochromatosis Arthropathy Research Initiative (HARI). It is available to download in Italian, Danish and English.
