About Us

Haemochromatosis International (HI) is an alliance of haemochromatosis associations. We aim to advance the health of people with haemochromatosis in any part of the world.  We welcome membership from any haemochromatosis association, national or otherwise. Our priorities are:

  1. To improve awareness of haemochromatosis throughout the world
  2. The geographical expansion of the alliance
  3. To develop an internationally recognised set of guidelines for the treatment of haemochromatosis

On this site you will find information about and links to haemochromatosis organisation in many parts of the world and about the services that they provide. If you are seeking information about haemochromatosis (genetic haemochromatosis – GH / hereditary haemochromatosis – HH) you should follow the link to an organisation that serves your country.

Haemochromatosis International has been created and is being run by a small group of dedicated volunteers:

President: Prof Paulo Santos (Brazil)
Past President: Mr Ben Marris, (Australia)
Vice President Elect: Dr Dianne Prince (Australia)
Secretary:  Dr Patricia Evans (UK)
Treasurer: Prof Robert Evans (UK)
Trustee: Dr Barbara Butzeck (Germany/EFAPH)
Trustee: Ms Emerencia Teixeira (Portugal)
Trustee: Mr Howard Don (UK)
Trustee: Mr Ketil Toska (Norway)
Trustee: Prof Rob Evans (UK)

Honorary Trustee: Prof Pierre Brissot (France)