About Us

Haemochromatosis International (HI) is an alliance of haemochromatosis associations. We aim to advance the health of people with haemochromatosis in any part of the world.  We welcome membership from any haemochromatosis association, national or otherwise. Our priorities are:

  1. To improve awareness of haemochromatosis throughout the world
  2. The geographical expansion of the alliance
  3. To develop and disseminate internationally recognised guidelines for the treatment of haemochromatosis

On this site you will find information about haemochromatosis (hemochromatosis), links to support organisations around the world and information about the services that they provide. If you are seeking information about haemochromatosis (genetic haemochromatosis – GH / hereditary haemochromatosis – HH) you should follow the link to an organisation that serves your country.

Haemochromatosis International was established in 2009 and is run by a small group of dedicated volunteers:

President: Dr Dianne Prince (Australia)
Past President: Prof Paulo Santos (Brazil)
Vice President Elect: Mr Howard Don (UK)
Secretary:  Dr Patricia Evans (UK)
Treasurer: Prof Robert Evans (UK)
Trustee: Dr Barbara Butzeck (Germany/EFAPH)
Trustee: Ms Emerencia Teixeira (Portugal)
Trustee: Mr Ketil Toska (Norway)
Trustee: Prof Rob Evans (UK)
Trustee: Dr Ray Fynes (Canada)

Honorary Trustee: Prof Pierre Brissot (France)