About Us

Haemochromatosis International (HI) is a global alliance of haemochromatosis associations. We aim to advance the health of people with haemochromatosis in any part of the world.  We welcome membership from any haemochromatosis association, national or otherwise. Our priorities are:

  1. To improve awareness of haemochromatosis throughout the world
  2. The geographical expansion of the alliance
  3. To develop and disseminate internationally recognised guidelines for the treatment of haemochromatosis

On this site you will find information about haemochromatosis (hemochromatosis), links to support organisations around the world and information about the services that they provide. If you are seeking information about haemochromatosis (genetic haemochromatosis – GH / hereditary haemochromatosis – HH) you should follow the link to an organisation that serves your country.

Haemochromatosis International was established in 2009 and is run by a small group of dedicated volunteers. Haemochromatosis International is also guided by a scientific advisory committee made up of eminent researchers and clinicians from around the world.  At the AGM in 2019 it was decided that a new joint scientific committee be formed to integrate the previously separate committees for the European Federation of Associations of Patients with Haemochromatosis  (EFPAH)  and HI. 

Members’ expertise covers diverse areas from basic sciences, laboratory medicine and several medical specialties, to the areas of health economics and advocacy. With representation from 10 European and 5 non-European countries, the joint scientific committee will bring a global perspective to the problems, issues and concerns of those affected by haemochromatosis.

Current board members

Current members of the EFAPH/HI Joint Scientific Committee 

Working with Stakeholders