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Advancing haemochromatosis care, worldwide
We work with patient organisations around the world to improve the lives of people with haemochromatosis.
What is haemochromatosis?
Haemochromatosis is a genetic condition that causes the body to absorb too much iron. If left untreated, iron overload can damage many parts of the body, including the heart, liver, joints and pancreas.
Our priorities
Working in partnership with our member organisations and guided by a joint scientific committee, our work focuses on three key goals:
- To raise global awareness of the prevalence and risks of haemochromatosis
- To provide advice, support and guidance for people with haemochromatosis, wherever they are in the world
- To shape and promote internationally recognised guidelines for the treatment of haemochromatosis
Our members
We work with patient organisations and support groups in over 15 countries, sharing resources and advocating for patients with one international voice. Whether you’re an established charity or a grassroots support group, membership gives your organisation access to a global network, shared expertise, and a platform to influence change at an international level.
World Haemochromatosis Week
Every year, in the first week of June, haemochromatosis patient organisations around the world join forces to raise awareness of this common yet frequently under‑recognised iron overload condition.
Supporting our work
Haemochromatosis International is grateful for the financial support of our past sponsors, including Novartis, DRG Germany, DRG USA, and Resonance Imaging.
Our work depends on the generosity of organisations that share our commitment to improving the lives of people with haemochromatosis.
If you’d like to support us, please reach out to us at info@haemochromatosis-international.org