Haemochromatosis International was established in 2009 and is a charity registered in the UK. It is run by a Board of Trustees.
Haemochromatosis International is also guided by a scientific advisory committee made up of eminent researchers and clinicians from around the world. At the AGM in 2019 it was decided that a new joint scientific committee be formed to integrate the previously separate committees for the European Federation of Associations of Patients with Haemochromatosis (EFPAH) and HI.
Members’ expertise covers diverse areas from basic sciences, laboratory medicine and several medical specialties, to the areas of health economics and advocacy. With representation from 15 countries, the joint scientific committee brings a global perspective to the problems, issues and concerns of those affected by haemochromatosis.