People in the UK (England, Scotland, Wales, Northern Ireland, the Channel Islands and the Isle of Man) with haemochromatosis are served by The Haemochromatosis Society.
The Haemochromatosis Society is one of our founder members.
The UK has a population of approximately 65 million people. The genetic mutations that cause GH are particularly prevalent in Scottish, Irish and other communities of Celtic descent – so much so that the condition is often referred to as “The Celtic Curse”.
The Haemochromatosis Society
The society is a patient organisation, campaigning group and a support organisation. It works to SUPPORT people affected by genetic haemochromatosis and their families, to encourage RESEARCH into the condition and its management, and to EDUCATE the medical profession, policy makers, patients and others, to improve the rates and ages of diagnosis.
The society is a charity registered with both The Charity Commission and The Office of the Scottish Charity Regulator.
You can contact the UK Haemochromatosis Society via:
- Website: www.haemochromatosis.org.uk
- Office: (+44) 03030 401101 or email@example.com
- Advice Line: (+44) 03030 401102 or firstname.lastname@example.org
- Family Advice Line: (+44) 03030 401103
- Facebook page: facebook.com/haemochromatosisuk
- Facebook Support Group: facebook.com/groups/haemochromatosis
- Twitter @ironoverloaduk