World Haemochromatosis Week is observed each year in the first week in June. The aim of the week is to raise awareness of Haemochromatosis worldwide and to promote the work of member organisations.  These organisations strive to inform the public and educate healthcare professionals about Genetic Haemochromatosis (GH) the importance of early detection and the need for equitable access to treatment. A list of our members, with contact details and website links, is available on our website under the “Member Organisations” tab.  From here you can link to much more information in many languages.

World Haemochromatosis Week begins this year on 1st June 2024, and we will be attempting to build on previous year’s success with our “Light Up Red” campaign.  Last year we achieved a total of 243 well-known buildings and landmarks around the world illuminated in red to raise awareness about the condition and prompt people to ask questions and, if concerned, get tested. For more information about diagnosis and treatment of Haemochromatosis, see our home page for the link to our “Therapeutic recommendations in HFE hemochromatosis,” written by some of the leading experts in the field. Translations into several languages are also available.

We will also be distributing posters with a QR code linking to our website to encourage people to learn more about Haemochromatosis.  If you arrive here and you like what we are doing, why not consider donating to support our work – via our “Donate Now” button on the home page.