Dansk Hæmokromatoseforening
Danish Haemochromatosis Association
Location: Haderslev, Denmark
Email: Please refer to website for contact details
Website: https://haemokromatose.dk/
DHA is a nationwide organization for patients and their relatives. We disseminate knowledge about early diagnosis and treatment. We support research and disseminate knowledge for affected patients.
DHA er en landsdækkende interesse organisation for patienter og deres pårørende. Vi formidler viden om tidlig diagnose og behandling af hæmokromatose og støtter forskning. Vi formidler oplysning og viden til Patienter med skader af sygdommen.
GH is, as far as we know, diagnosed in about 3000-5000 people in Denmark. Unfortunately this is often too late when damage has already occurred. In most cases General Practitioners (GPs) refer patients to specialists at the gastroenterology departments at the hospitals for evaluation, genetic testing and treatment. Knowledge about haemochromatosis is limited among GPs .
It is estimated that 1 in 250 ethnic Danes carry the risk of developing haemochromatosis which equates to around 20,000 people.
Most patients already diagnosed are cared for by GP´s, however in some cases at the hospital clinics. Phlebotomy and blood testing is in most cases done at hospitals.