Haemochromatosis UK (HUK)
Location: Spalding, UK
Email: office@huk.org.uk
Website: https://www.haemochromatosis.org.uk/
We work to support anyone affected by genetic haemochromatosis, across three key areas – Support, Education & Awareness and Medical Research. We have our national helpline, regular meetings, and a wealth of literature on our website.
Our National Help Line is open Monday to Friday 12:00 noon to 3:00pm for UK residents and Haemochromatosis UK international members resident outside USA & Canada. Regrettably, we are unable to provide advice to NHS or other clinicians or residents in USA or Canada.
Our Buddy Scheme pairs newly diagnosed people with genetic haemochromatosis with our trained volunteer buddies, to provide ongoing 1-2-1 support around new diagnosis, family concerns, anxiety about venesections or treatment, and questions about diet, vitamins or living well with iron overload. Our volunteers are DBS-checked and well trained.
Our leaflets, booklets and guides can be found on our website.
To speak with other with genetic haemochromatosis patients, lead by our Advanced Nurse Practitioner, patients can sign up to attend our “Iron Brews”, social events. Details can again be found on our website.