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Welcome to the website of Haemochromatosis International – an alliance of hereditary haemochromatosis  groups from around the world.

In March 2018, Haemochromatosis International’s  “Therapeutic recommendations in HFE hemochromatosis for p.Cys282Tyr (C282Y/C282Y) homozygous genotype” was published in the journal Hepatology International with free public access. The publication can be downloaded free.

Click here: https://doi.org/10.1007/s12072-018-9855-0

The Therapeutic Guidelines have now been translated in multiple languages. Click here  for translations.

World Haemochromatosis Week is held every year in the first week of June. The aim of this week is to raise awareness of haemochromatosis around the world.  In 2020 it will run from Monday 1st June to Sunday 7th June.

Haemochromatosis International gratefully acknowledges the support of Novartis, DRG Germany, and DRG USA with the start-up of this Charitable Incorporated Organisation. We welcome financial sponsorship to help us continue.

Please contact us at info@haemochromatosis-international.org for more information.